As a coalition, we love a good story about collaboration and partnership. When we heard that two of our partners were working together on a unique project, funded by a third partner, we knew we had to share it with you. The three-partner project works to increase follow-up and surveillance care for breast cancer survivors transitioning to a primary care setting.
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Carson Tahoe Breast Center was recently selected as the only provider in Nevada, and one of only 131 worldwide, to participate in the prestigious Tomosynthesis Mammographic Imaging Screening Trial (TMIST). Led by Dr. Kinsey Pillsbury, Medical Director at Carson Tahoe Breast Center, this innovative program will offer new advancements, opportunities, and expertise in the early detection of breast cancer. Since opening the comprehensive Breast Center in August 2016, over 10,000 women have accessed the facility for preventive and diagnostic care.
Team NCC, along with several partners from the state’s cancer control programs, recently returned from the National CDC Cancer Conference in Atlanta with a ton of notes, some fresh ideas, and great insights into what other states are working on in cancer control.
The CDC only hosts this conference once every five years, so they pack a plethora of speakers and sessions into just a few days. Being the strategic team that we are, we split up as much as possible and were able to attend many of the sessions. Here are some of the key takeaways we have from the conference:
My name is Nancy G. I am a survivor of anal cancer, March 2015 at the age of 74.
I had been fighting an anal fissure for six months and was sent to a surgeon for surgery to correct the problem. I met with the surgeon and he confirmed I needed surgery and that he was 99% sure there was no cancer. Three weeks later I had surgery and I had cancer.
After chemo and radiation there is no evidence of cancer. I did not know much about cancer, but for my type of cancer there was only one type of treatment.
In 2013 Nevada was the fourth state in the nation to prohibit minors under 18 from using indoor tanning devices. NRS 597 outlines the law's key requirements, which include posting both notices and warnings about the risks of indoor tanning, requiring customers to sign a form acknowledging the risks of indoor tanning, and as mentioned, prohibiting minors from using the devices. It was a victory for NCC and other cancer control partners and numerous legislative sessions working to pass the law.
From the Centers for Disease Control and Prevention (CDC):
More than a year ago, NCC brought together partners from across the state to form a task force focusing on survivorship and palliative care. That first meeting was a hit, and partners were thrilled to be working together on a portion of the cancer continuum that's so vital yet we felt was a weak point for our state. Shortly after, NCC staff and our counterpart at the State of Nevada Comprehensive Cancer Control Program attended the National Cancer Survivorship Research Conference in Washington D.C. and learned that Nevada wasn't behind at all.
“It is the best thing you will ever do for yourself. And the trainers—they are amazing. They are just great no matter what type of cancer you have. They’re just great! It’s a huge resource.”
“A lot of it is recuperative care rather than just muscle building.”
During Spring 2017 NCC hosted a series of focus groups with cancer survivors to learn more about their experiences: both negative and positive. One program that elicited positive feedback which resulted in several participants planning to enroll in the program was Cancer: Thriving and Surviving. This evidence-based six-week workshop developed by the Stanford University School of Medicine is offered in both Reno and Las Vegas. Our hope is that with greater enrollment the program could spread to additional communities and locations throughout the state.
My name is Sharon Nagel. I am a survivor of two different cancers.
I was diagnosed with the first cancer in 1979 when I was 23 years old. One morning I awoke with an egg-sized lump in my neck that turned out to be thyroid cancer. I was a single mother of two children under 5 years old and had no insurance. After two surgeries and countless medical bills, I had to file bankruptcy because I was unable to work for almost a year.